The results were good, no sign of any more tumors in his leg or lungs and Choong could see some new bone growing in his left leg in the right places. I tuned out when they started talking about the wobbly bolt, but apparently it is still OK. He said that it's good to see the bone isn't being re-absorbed which can often happen after chemo.
Simon is allowed to increase the weight on his leg to 30% and when we go back in 8 weeks for another chest scan he will be allowed to increase it to 50%. About 3 months after that for the next lot of leg and chest scans it might go to 80-90% weight bearing and he could just use the brace without the crutches. Simon is pretty excited about that and can really notice a difference already with just 30% compared to 10%.
After the 90% weight the next step would be to lose the brace (hooray) and start back at 30%. It was REALLY great news. I had been trying not to think too much about the results, but new that God carried us through last year and would do it again if we needed it.
Thursday, January 29, 2009
Monday, January 19, 2009
Scans...
Simon and I went up to Melbourne this morning to have scans done on his leg to check the bone healing and those loose bolts I expect and to scan his lungs to check for tumors. I thought (and sort of hoped) they were going to do all of his body to make sure there were no tumors anywhere, but they know what they're doing I guess!
We will get the results on 28th Jan. I am trying not to think about it too much. Simon is feeling really good and we had a nice day, Daisy and Kitty came so they kept me company for the one and a half hours at the hospital and we had fun together for the rest of the day. Sometimes it all seems so normal. I will write when we get the results.
We will get the results on 28th Jan. I am trying not to think about it too much. Simon is feeling really good and we had a nice day, Daisy and Kitty came so they kept me company for the one and a half hours at the hospital and we had fun together for the rest of the day. Sometimes it all seems so normal. I will write when we get the results.
Wednesday, December 17, 2008
A screw loose...
A couple of months ago Simon went to see Prof. Choong (surgeon who did operation to remove and replace shin bone etc...) and the scans showed that the bone hadn't healed a lot probably because of chemo, but that he could start putting 10% of his body weight on it.
He had an appointment with Prof. Toner, the oncologist at Peter Mac this morning and an x-ray of his left leg. So he was hoping they would tell him it had healed enough to start putting more weight on because he feels like although it's better than nothing, 10% isn't that much. He feels really good these days and finds it frustrating not being able to get around without his brace and crutches. He tried to rebel a few weeks ago and stopped wearing his brace, but a bit of nagging and emotional black mail from me (and a makeover of his brace from flesh coloured fuzzy felt on the front, to nice black material) had him wearing it again.
It will be great when he is properly mobile again. Most nights he has dreams where he is playing football (soccer), running, riding a bike or some sort of activity that makes him twitch and jump in bed which is probably fun for him, not so fun for me!
Unfortunately Toner said it hadn't healed enough to put any more weight on. He didn't say whether it had changed at all since last time. He will have scans again at the end of January, where they will do all of his body and bones to make sure there is no more cancer.
They discovered today that one of the screws holding the bone and metal plate together is coming loose and I will NEVER know if this is true or not, but apparently you can feel it protruding through his skin and another of the screws seems to have broken. I don't know too much more about this because as Simon was trying to explain, I was trying not to faint, so was not very good, supportive wife (have broken into sweat typing this). Anyway they will just leave it for now because they don't want him to have more surgery at the moment and will wait until next year to work out what to do. In the mean time I will try not to think about stray screw in his body. ( I am unable to read over this paragraph to check that it makes sense, so sorry if it doesn't).
He had blood tests today to check how his liver and the rest of his body is going and I think we don't hear about the results unless there is something wrong.
These past few months since chemo finished have been very lovely. When I see photos of Simon during chemo I am shocked at how unwell he looked, fortunately I wasn't too aware of this during it all. Kitty didn't recognise him in a photo with him holding her (without his hair), now that all of his hair has grown back. Every morning when I get Hugo up he say's "Daddy" and goes looking for him. And Daisy has had a couple of times where she's been a bit teary and wants Simon to take her to kinder or wants to just stay with him.
On the 21st of December it will be one year since we found out about his cancer. His birthday (22nd December) will be a little more exciting than it was last year!
He had an appointment with Prof. Toner, the oncologist at Peter Mac this morning and an x-ray of his left leg. So he was hoping they would tell him it had healed enough to start putting more weight on because he feels like although it's better than nothing, 10% isn't that much. He feels really good these days and finds it frustrating not being able to get around without his brace and crutches. He tried to rebel a few weeks ago and stopped wearing his brace, but a bit of nagging and emotional black mail from me (and a makeover of his brace from flesh coloured fuzzy felt on the front, to nice black material) had him wearing it again.
It will be great when he is properly mobile again. Most nights he has dreams where he is playing football (soccer), running, riding a bike or some sort of activity that makes him twitch and jump in bed which is probably fun for him, not so fun for me!
Unfortunately Toner said it hadn't healed enough to put any more weight on. He didn't say whether it had changed at all since last time. He will have scans again at the end of January, where they will do all of his body and bones to make sure there is no more cancer.
They discovered today that one of the screws holding the bone and metal plate together is coming loose and I will NEVER know if this is true or not, but apparently you can feel it protruding through his skin and another of the screws seems to have broken. I don't know too much more about this because as Simon was trying to explain, I was trying not to faint, so was not very good, supportive wife (have broken into sweat typing this). Anyway they will just leave it for now because they don't want him to have more surgery at the moment and will wait until next year to work out what to do. In the mean time I will try not to think about stray screw in his body. ( I am unable to read over this paragraph to check that it makes sense, so sorry if it doesn't).
He had blood tests today to check how his liver and the rest of his body is going and I think we don't hear about the results unless there is something wrong.
These past few months since chemo finished have been very lovely. When I see photos of Simon during chemo I am shocked at how unwell he looked, fortunately I wasn't too aware of this during it all. Kitty didn't recognise him in a photo with him holding her (without his hair), now that all of his hair has grown back. Every morning when I get Hugo up he say's "Daddy" and goes looking for him. And Daisy has had a couple of times where she's been a bit teary and wants Simon to take her to kinder or wants to just stay with him.
On the 21st of December it will be one year since we found out about his cancer. His birthday (22nd December) will be a little more exciting than it was last year!
Monday, September 22, 2008
The results are in...
After all the pregnancy symptoms Simon has had during this treatment (which by the way has lasted for 9 months) this is it, he is on his way home! We are all running around the house squealing, Hugo of course has no idea why and embarrassingly for him has the highest pitched squeal out of us all. I can't believe it's over! It was pretty close, only .05, but I was prepared to kidnap him if it wasn't low enough by now. A very, very happy day.
Sunday, September 21, 2008
Well he is still in hospital. Last night his counts were still .18. He has been up since 3am with bad headache. I took him a coffee and spent the morning with him. He's feeling a bit sad and frustrated and we are hoping the tests this evening will show he can come home, but not too sure.
I'm so glad it hasn't been like this all year and that they used to let him home when his counts were down to .2, not .05 like everyone else. Will write more when we get the results tonight.
I'm so glad it hasn't been like this all year and that they used to let him home when his counts were down to .2, not .05 like everyone else. Will write more when we get the results tonight.
Saturday, September 20, 2008
One more sleep?
Simon's methatrexate counts were .2 something last night so it's possible he may get down to .05 by tonight to come home! He was moved back up to ward 9 last night so that's a bit nicer for him. He woke up with a headache today and didn't sound too great, but I think he's OK apart from that. I'm going up to have lunch with him, maybe the last time I'll visit him there!
Subscribe to:
Comments (Atom)