Things are going well and Simon has been busy at work. Over the weekend he felt pretty bad and we thought he might be getting a cold but fortunately it passed and he is feeling fine again. Next week he starts chemo and it will be down to 10 weeks left. During that time he only has 2 weeks where he doesn't have any treatment, which sounded a little daunting at first until we worked out that out of about 70 nights he will hopefully only spend about 20 of them in hospital. When we were working this out as a good thing, we were thinking back to just over one year ago when Hugo was born and Simon had gastro so he slept on the sofa bed in the lounge. At the time it seemed horrible being separated, even though he was only a room away!
After having him home for a couple of weeks it seems hard to think of him going away again. Especially when last night at about 10pm there was a knock on the door from some drunk guy wanting a lift back to Corio! And it's so nice when he's here if I am woken by a loud noise (that's not his snoring) and I don't have to worry about what it could be. As he said, he's not sure what he would actually be able to do if it was something more than a random bump in the night, but it's just not so scary when he's here!
The infection in his leg doesn't seem to be any worse, which is obviously a relief. He's still on antibiotics for it so I'm not sure when the doctors would expect it to be gone completely. As much as I love him, I look forward to not having to change those dressings!
Thursday, June 26, 2008
Tuesday, June 17, 2008
Monday, June 16, 2008
We had a lovely (but busy) weekend catching up with family and friends. The kids have colds so Simon has been trying to be careful with contact, but today he didn't feel as good as normal. His counts will be dropping this week so it could be just to do with that. He is trying not to do too much at work so that he's not too run down as he's not sleeping well either. It's hard because he is really busy, but a bit of a reality check, that catching a cold when his counts are low would not only make him feel terrible but can be dangerous and life threatening, meant that he was able to delegate a couple of things that would help him a little!
Apart from that though there is nothing much to report!
Apart from that though there is nothing much to report!
Thursday, June 12, 2008
It is amazing how well Simon is feeling. He worked today and is doing a bit more this evening. He said he gets waves of nausea but the work distracts him enough. He is getting a triple dose now of the drugs for his hands, so he doesn't feel pain in them, just the numbness. One of Carolyn's friends had the same thing with her hands after an operation and I think she said it took a few months to go, but it did.
A nurse was telling Simon how shocked she was at how little the chemotherapy seems to be affecting him. Everyone reacts differently, but she said that even with the anti nausea drugs people still vomit and feel so terrible and certainly wouldn't be able to work. We feel very, very blessed.
A nurse was telling Simon how shocked she was at how little the chemotherapy seems to be affecting him. Everyone reacts differently, but she said that even with the anti nausea drugs people still vomit and feel so terrible and certainly wouldn't be able to work. We feel very, very blessed.
Wednesday, June 11, 2008
He went up to Peter Mac for his overnight chemo yesterday morning and is expecting to finish around 7:30 tonight. It's amazing how easy this one seems when I don't have to go up to Melbourne and he's only away for one night. I never thought that would be an easy thing!
He is doing a bit of work up there which is good and as usual is being driven nuts by inconsistency from staff with the treatment of various things! But he's OK.
I have been changing the dressings on his leg each day, which if you know what I'm usually like with things like that is possibly a miracle, considering there are open, white/green areas on the scar, but it saves him having to go into the doctors each day, which he was doing.
It is so wonderful that he can drive to and from hospital and the staff are amazed that he can even pop into work the same day he gets home (which he did last week). We are so fortunate that he is feeling this well.
So things are going well. 12 weeks of chemo to go!
He is doing a bit of work up there which is good and as usual is being driven nuts by inconsistency from staff with the treatment of various things! But he's OK.
I have been changing the dressings on his leg each day, which if you know what I'm usually like with things like that is possibly a miracle, considering there are open, white/green areas on the scar, but it saves him having to go into the doctors each day, which he was doing.
It is so wonderful that he can drive to and from hospital and the staff are amazed that he can even pop into work the same day he gets home (which he did last week). We are so fortunate that he is feeling this well.
So things are going well. 12 weeks of chemo to go!
Friday, June 6, 2008
Wednesday, June 4, 2008
Things are going well enough this week. He went to Peter Mac on Tuesday and has been able to do some work which has helped pass the time for him and he's not feeling so miserable having to be there. He was hoping that he might have another short stay like last week, but just got the results of the blood test and the count was still 5.6, last week at this time it was 2.4, so at least we know not to get our hopes up.
I thought I had more news but I can't remember any of it!
Daisy, Kitty and I got a lift to the hospital with Carolyn and the boys which was really nice. We had dinner with Simon then caught a train home. We had such a lovely time with him. We will go up again for dinner tomorrow night now that it seems he won't be coming home tomorrow.
The drugs for his hands still seem to be helping. The doctor has doubled the dose as they weren't being as effective and that has helped.
OK, if I remember anything else, I'll write it down this time! Only 13 more weeks of chemo left! Yippee!
I thought I had more news but I can't remember any of it!
Daisy, Kitty and I got a lift to the hospital with Carolyn and the boys which was really nice. We had dinner with Simon then caught a train home. We had such a lovely time with him. We will go up again for dinner tomorrow night now that it seems he won't be coming home tomorrow.
The drugs for his hands still seem to be helping. The doctor has doubled the dose as they weren't being as effective and that has helped.
OK, if I remember anything else, I'll write it down this time! Only 13 more weeks of chemo left! Yippee!
Subscribe to:
Comments (Atom)