Simon went up to Peter Mac yesterday and was very excited to find he has a single room for the week. It makes it as nice as it could possibly be for him. He has two ulcers in his mouth that are painful, but apart from that he feels good. The numbness in his hands hasn't improved but we are so thankful for the medication that is stopping them from hurting. He finds his crutches more frustrating than his hands these days. His hair seems to be growing back slowly which is exciting. I don't think I will let him cut his hair for a year.
Last week Daisy, Hugo and I had gastro. I am amazed that Kitty and Simon have avoided it so far, especially considering Simon's counts would have been right down.
After we finish this week there are only 5 more weeks left until his last treatment. Amazing. I still can't imagine it.
Wednesday, July 30, 2008
Tuesday, July 15, 2008
It's been a good week. He was in Peter Mac from Tuesday to Friday last week and was due to go in overnight today but the ward was full, so they were able to squeeze him in on the day ward and he will just go in for a couple of hours today, then come home and do the same again tomorrow which is SOOOOOO great for him not to be away over night! Only 8 weeks to go!
Monday, July 7, 2008
Simon got home from Peter Mac on Friday at lunchtime and is heading up again tomorrow. It's so lovely when he is home and feeling well. We had a good and busy weekend and it went far too quickly!
I have to try not to think too much about him going away again and how often that will seem over the next 9 (yes, only 9!) weeks. I also have to focus on braveness. Last week the courtyard gate was open so I went out there in the dark to close it and heard rustling in the garden, I froze then ran back inside. I stood looking out the window for a moment then, knowing that I wouldn't sleep if I left it open, walked back out, stopped, picked up a rock and threw it into the shrubbery. Nothing. I went to pick up another rock to make sure whatever it was was either dead or gone, but it (the 'rock') turned out to be a screwed up tissue-yuk, so I just ran past the garden, shut the gate and ran back inside as fast as I could and fortunately wasn't killed. Yes, I need to focus on bravery.
I have to try not to think too much about him going away again and how often that will seem over the next 9 (yes, only 9!) weeks. I also have to focus on braveness. Last week the courtyard gate was open so I went out there in the dark to close it and heard rustling in the garden, I froze then ran back inside. I stood looking out the window for a moment then, knowing that I wouldn't sleep if I left it open, walked back out, stopped, picked up a rock and threw it into the shrubbery. Nothing. I went to pick up another rock to make sure whatever it was was either dead or gone, but it (the 'rock') turned out to be a screwed up tissue-yuk, so I just ran past the garden, shut the gate and ran back inside as fast as I could and fortunately wasn't killed. Yes, I need to focus on bravery.
Wednesday, July 2, 2008
Simon started chemo again on Tuesday and managed to squeeze in a court case in Melbourne before he went in to hospital. There are only 10 weeks left now, I can't imagine not having all of this going on. Although I feel pretty used to it all I still find it really hard every time he has to be away.
He is feeling good and says he is able to get more work done than he does at work or when he's working from home so that's one benefit! He has his own room this time which is a treat.
There isn't really anything else to report, I went up and had lunch with him today and will take the kids up to see him tomorrow. He will hopefully be home on Friday. OK that's all, bye!
He is feeling good and says he is able to get more work done than he does at work or when he's working from home so that's one benefit! He has his own room this time which is a treat.
There isn't really anything else to report, I went up and had lunch with him today and will take the kids up to see him tomorrow. He will hopefully be home on Friday. OK that's all, bye!
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