Simon has an appointment at Peter Mac today with the oncologist, Prof. Toner to talk about the rest of the treatment plan (I think only 16 weeks left!). And hopefully he will be able to get some medication for his latest treat... gout! The infection in his left leg doesn't seem to be getting any worse since the doctors at Myer St changed the kind of dressing they put on it.

He has a few questions for Prof. Toner, both of his legs are pretty swollen, there is some clear, hard thing sticking out of the top of the wound in his right leg and some numbness around the wound. He is also hoping to see Prof. Choong who he hasn't seen since he left hospital. The doctors at Myer St have been trying to contact him because they are thankfully concerned enough about the unchanging bad condition of his hands to want to solve it and fix it, but he hasn't been returning their calls which is pretty annoying! They are wanting to run some tests and are waiting to get the go-ahead from him.

We are really grateful for their concern and the hope of tests and a cure. Simon is finding it so difficult and depressing and although Prof. Choong has acknowledged that it is most likely caused from the anaesthetist during surgery, it seems as though Simon has just been discharged and forgotten. Simon wants to punch the anaesthetist and I want to smack him.

Poor Kitty is finding things hard at the moment. She used to love going to kinder but now cries every time I take her and doesn't want to go. Her kinder teacher told me that she has become very withdrawn and just wants to stay with the teachers the whole time rather than playing with her friends like she used to. She has also been asking them alot of questions about what will happen if I don't come back and who would feed Hugo because he can't feed himself if I went away and how would they get to kinder vbecause it's too far for them to walk. I think it started when Simon was in hospital for so long after the surgery. She doesn't want me to go anywhere without her, so I feel pretty sad about that. It's been good having Simon back for these three weeks, but next week he starts the chemo where he is in for 4-5 nights each week for two weeks, so that will be hard for her again.

I am just loving having Simon home with us. Sometimes things seem really hard and exhausting, and it's difficult when he is feeling so sad and I can't help him, but I just can't get over how blessed we are. Exactly 5 months ago today we recieved the news that he had a tumor and a good outcome would be to lose his leg, rather than his life! I was dealing with losing Simon to this, rather than getting my hopes up for anything else.

Sometimes I feel as though I'm being insensetive to him if I'm feeling happy when he is sad. Sometimes I do feel really sad with him, but most of the time I am just trying and feel like I'm only being faux-sad and empathetic because I just can't make the excitement go away. He is very amazing, because I can't imagine how hard it is for him dealing with not being able to do very much at all by himself and he is constantly uncomfortable and very often in pain with his hands, but he isn't constantly complaining like some people might.

This morning at breakfast we were having a boys in the house vs girls in the house competition.
- All the girls in the house can do handstands, the boys can't
- All the girls can run, the boys can't
- All the girls can walk by themselves, the boys can't
- All the girls can jump, the boys can't etc...

Anyway, I will write more if there is anything particularly interesting to report from his visit to hospital today.