Friday, February 8, 2008

- Sunday 3 Feb (Happy Birthday Carro!)
I was going to go up with Simon, but then we thought he wouldn't be long and it was Kitty's first day at Sunday School, so I took her instead, only to find out that if he had needed platelets or a transfusion he wouldn't have been able to drive, so now I feel like meany wife. But the results show his counts are climbing which is really good.

- Friday 1 Feb
Simon is pretty tired today. He has another blood test today and at 9pm a doctor from Peter Mac calls to say his blood count is as low as it can be and his platelets are dropping so he needs to come up on Sunday for more testes incase he needs more platelets or a transfusion. This seems scary but when I call Carolyn to tell her, her first response is "good" (she used to be an oncology nurse). So either she was being mean, or it means the chemo dosage is right for Simon.

- Thursday 31 Jan.
Simon is again well enough to do some work then play some board game in the evening with the boys.

- Wednesday 30 Jan.
The antibiotics seem to be working slowly and Simon feels well enough to work (from home) for a few hours which is really great.

- Tuesday 29 Jan.
He is still feeling bad and his arm is really sore where the drip went in and it's quite swollen. He goes in for a blood test (he has 3 of these inbetween treatments) to check his platelets and blood count. Then he calls Peter Mac to see if he needs to do something about his arm. They say it sound's like a clot and he needs to see someone.

Dr Sheehan is really good b/c when I ring him to see if he can see him (he is the one who found this thing in the first place) it's his day off, but he calls back 10 minutes later and has got us in to his fully booked surgery with his replacement doctor who sees Simon straight away and they put a note on his file saying he can be seen any time, even when they are full. The doctor is really good and talks to a Peter Mac doctor to give the right antibiotics. It sounded scary that he had a clot. I'm not sure if it was or not.

- Saturday 26 Jan. - Australia Day
He is feeling pretty bad again today and continues to do so over Sunday and Monday.

- Friday 25 Jan. (Happy Birthday Gordon!)
It seems he is becoming a woman. Today he is crying at anything. He is asking for advice on how I cope when I feel like this. I suggest chocolate and a sleep. I am wondering what the next side effect will be. Probably makeup I expect? It feels pretty hard at the moment, especially when we think it's only been a few days and there are months ahead of this. It's nice that people are dropping in. We love that since this all happened people are beginning to just visit. If someone asked if we were up to visitors we may have said no, but when they just turn up, it turns out to be pretty nice.

- Thursday 24 Jan.
Poor Simon is like a pregnant woman. He feels pretty nauseas and it's scary if he vomits because it (the vomit) will be toxic for a day or two after the chemo. Fortunately he doesn't actually vomit, just feels like it a lot. He finds it really hard to eat and is really tired. I get lots of sympathy for having to cook while I had morning sickness! He had hic-cups for about 24 hours which is a ridiculous side affect. It was funny for a bit and then not. A nurse comes to give him an injection. She is friendly and is talking about us working out making decisions about carrying on medical treatment if he is unable to make decisions for himself. So that wasn't very nice. We smiled politely and haven't made any decisions.

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