Wednesday 13 Feb.
We had a really lovely time last night. We sat in the family room at the end of the ward where Daisy and Kitty coloured in, then we all took it in turns of playing air hockey, or hair ockey as Daisy calls it. It was nice all being together (minus poor Hugo!) having fun.

He got the results of the methatrixate count left in his blood last night at about 10pm. They were expecting it to be around 12 (not sure what it started as) and it was already down to 3! It has to be .5 for him to come home again. They were pretty surprised to see it this low and had only known one other patient to have it so low so quickly. So that's exciting. As I write this I'm waiting to hear the next result, should be around the same time, to see if he can come home soon. If it's close tonight they will do another test in the morning and he might be able to come home then. It's pretty lonely at home without him and I can't stop eating chocolate.

It's been so good having Jane here when I wake up during the night, knowing she's just down the hall. On the 1st night she stayed when we had to leave at 5.30 am, we came back 10 minutes later because Simon had forgotten his wallet, so he snuck in the side door. Jane heard this and assumed it was a burglar so looked around her room for a weapon, found a can of aeroguard (to spray in the face) and searched the house. Fortunately Simon had left, so he was safe. Poor but very good and brave Jane!

This round of chemo has been a lot better. Simon has only felt a bit tired and sick but feels normal today, so it makes the next methatrixate treatments seem less daunting, apart from the lethal dose part of it.